Columbia University in New York is doing research on Lyme disease. They have a web page with information for Lyme patients that includes definitions, complications, information about testing, and answers to questions that you may have about Lyme disease. This is a source that you could share with your primary care physician. The contact page also contains information about how someone could make an appointment with their facility to get a second opinion. Rather than going to Cleveland Clinic or Mayo Clinic, where they don't seem to be able to properly diagnose or treat Lyme patients, I would recommend going to Columbia instead. Below is a link to their contact page. I wish that I had known about this useful resource when I first contracted Lyme disease. There is still much to learn about this complicated illness, and they are working on it!